I didn’t have many breakthrough moments in therapy, but learning this concept was a massive step in understanding my emotions after cancer. My psychologist explained that a lot of my feelings were linked to grief. I was confused. Nobody I knew had died?? Was I grieving the people who didn’t survive Ewing’s sarcoma? Was thisContinueContinue reading “Grief of self”
Tag Archives: Ewing’s sarcoma
A New Chapter
Summer 2019 has been the beginning of a new chapter in life. It’s been very exciting and stressful. I’m quite glad that it has begun to settle down now. I moved out of a student house and into a flat with my boyfriend, moved away from Plymouth to Bristol, and started a new job atContinueContinue reading “A New Chapter”
How I get the most out of an NHS appointment
I am SO blessed to say that all of my treatment has been covered by the NHS. I can’t even begin to imagine the trauma of not being able to afford treatment, and thinking about the fact that other patients with Ewing’s Sarcoma have to crowdfund to purchase treatment makes me so sad and angry.ContinueContinue reading “How I get the most out of an NHS appointment”
A moment to realise I have become more involved in sharing my experience
I wrote the following piece last August for a charity social media post. Thought I’d pop it on here to show that I had a goal set to become more involved in helping other patients, and feel that I am fulfilling that goal with this blog! 🙂 It’s a bit emotionally draining to write aboutContinueContinue reading “A moment to realise I have become more involved in sharing my experience”
Such wonderful problems to have
I just wanted to put it out there that I fully acknowledge how privileged I am to have the issues I discuss on here. More children are now surviving cancer (and making it into remission) than ever, which has opened the window of opportunity to live a life like mine, and I’m eternally grateful. TheContinueContinue reading “Such wonderful problems to have”
How I deal with intrusive thoughts about childhood cancer treatment
PTSD. post traumatic stress disorder. This is another diagnosis I have as a result of childhood cancer. It makes a lot of sense really, just from looking at the wording of it, as cancer treatment comes with unholy amounts of trauma and stress. A symptom / result of PTSD is having intrusive thoughts. Throughout myContinueContinue reading “How I deal with intrusive thoughts about childhood cancer treatment”
Finding a tribe
As a young adult living in childhood cancer remission, I often find myself lost in the ‘in-between’. I find teen/young adult support does not suit my situation, as it is catered to a teen diagnosis (and I was 8 at point of diagnosis). I am obviously too old for child support groups, as I amContinueContinue reading “Finding a tribe”
Accepting cancer remission into my identity
Finding cancer’s place in remission life It seems crazy to think I was only eight at the point of diagnosis. Growing up to me was about distancing myself from cancer, focusing on different aspects of myself in order to be known for something else. To destroy my ‘cancer girl’ title. I wanted there to beContinueContinue reading “Accepting cancer remission into my identity”
Nothin’ like a breakdown
There really is nothing like a prolonged, all encompassing, post-graduating breakdown to give you some perspective on what’s actually important to your soul. So helloooooo blog, I’ve been meaning to make you. Ya know what I’ve realised? Having cancer as a child was really shit. And I am not allowed to talk about how shitContinueContinue reading “Nothin’ like a breakdown”
Remission Life 