I am SO blessed to say that all of my treatment has been covered by the NHS. I can’t even begin to imagine the trauma of not being able to afford treatment, and thinking about the fact that other patients with Ewing’s Sarcoma have to crowdfund to purchase treatment makes me so sad and angry.ContinueContinue reading “How I get the most out of an NHS appointment”
Tag Archives: remission
A moment to realise I have become more involved in sharing my experience
I wrote the following piece last August for a charity social media post. Thought I’d pop it on here to show that I had a goal set to become more involved in helping other patients, and feel that I am fulfilling that goal with this blog! 🙂 It’s a bit emotionally draining to write aboutContinueContinue reading “A moment to realise I have become more involved in sharing my experience”
Bad for your health, good for your soul
I often find myself at the receiving end of unsolicited health advice, as I’m sure we all do from time to time. It’s an interesting perspective to query as a young person living in cancer remission. A lot of things cause cancer. My cancer was caused by a genetic mutation, which sadly would not haveContinueContinue reading “Bad for your health, good for your soul”
Write yourself a spiel!
This is a real quick and practical piece of advise for you guys; nail a spiel. Prepare and rehearse a short synopsis of your cancer treatment and outcome that you can reel off when someone asks about it. Why? To give a cohesive answer that does not trigger an emotional response. Just saying the wordContinueContinue reading “Write yourself a spiel!”
Such wonderful problems to have
I just wanted to put it out there that I fully acknowledge how privileged I am to have the issues I discuss on here. More children are now surviving cancer (and making it into remission) than ever, which has opened the window of opportunity to live a life like mine, and I’m eternally grateful. TheContinueContinue reading “Such wonderful problems to have”
Accepting cancer remission into my identity
Finding cancer’s place in remission life It seems crazy to think I was only eight at the point of diagnosis. Growing up to me was about distancing myself from cancer, focusing on different aspects of myself in order to be known for something else. To destroy my ‘cancer girl’ title. I wanted there to beContinueContinue reading “Accepting cancer remission into my identity”
Why I’m boycotting the Cancer Survivor title
noun: survivor; ‘a person who survives, especially a person remaining alive after an event in which others have died’ Yup, that’s me. So why am I boycotting the ‘cancer survivor’ title? It comes down to two problems. 1 – It insinuates that other people weren’t strong enough to survive, as if it were a choice orContinueContinue reading “Why I’m boycotting the Cancer Survivor title”